The Discovery...

I have promised in my previous post ("Autism... In My Family") that I will share my experiences we had with our twin boys who had been diagnosed with autism. In fact, I'll be more than happy to share. I don't see any point hiding or keeping them to myself anyway. I would love to hear from any parents who have dealt or are currently dealing with such issue with their child / children. I want to know... I want to learn... I want to help my children to be better...

Year 2009. The boys were almost 2 then. They were a pair of bubbly, cheerful, and active kids. Memang tidak pernah pun terlintas di dalam kepala bahawa the twins akan jadi seperti ini - menghidap  autisme. Never. Not a slightest idea. We've always visited their paedi regularly, as per the schedule required for vaccinations and routine check-ups since their birth. We never missed. Mereka pun tak pernah sakit teruk. Demam-deman biasa tu, ada lah. But they were never seriously ill.

One morning, I was at my OBGYN's office, waiting for my regular appointment. I was reading a magazine. Hubby was outside the office attending to calls on his mobile phone. As I was flipping through the pages, I came across an article on autism. A very short, one page article. If I remember it right, the title was "Autism and Its Symptoms". I was drawn to read it, I had no idea why. But I read it. ALL, word by word. My heart almost stopped. I had to read the article over and over again, just to be sure that I read it right. I waved to hubby, signalling him to come and sit next to me. He came, and I showed the article to him. I didn't say a word. He stared at it. (I supposed he was reading). Then he turned to me and looked me right in the eyes, and said, "Let's get them properly checked". I whispered, "I think they are", and nodded my head at the same time.

At the boys' next check-up, I asked the paedi if he was also of the same opinion about the boys. He didn't immediately say yes, nor was he denying it. He suggested that we bring the boys to see a child developmental specialist, Dr. Rajini, who was attached to another private hospital. He gave us a referral letter, but I left the letter in the drawer at home and only took it out months later.

Why did I do that, you asked? Firstly, it was not on purpose. I somehow left the letter in the drawer and had forgotten about it. When I did remember, both hubby and I were tight up with work. And when I did remember (again...), I had this chill down my spine thinking about all the possibilities of the diagnosis. That they might have it. Somehow one day in late October, I found the courage to call Dr. Rajini's office to fix an appointment. We met her in August 2010. By the time we met Dr. Rajini, we have already enrolled the boys into a kindy nearby our house. Now... Getting them to be accepted into a school (kindy) was another different story... I'll save that for next time.

So, back to our meeting with Dr. Rajini. She met the boys. She talked and played with them. Asked us all sorts of questions (which we didn't mind really, whatever that could help her to help us). After about one and a half hours with her, came the diagnosis. She confirmed that the boys within the austism spectrum disorder. Asyraff was diagnosed as 'moderate', and Aimar as 'mild'. Rasa nak tercabut nyawa. Bagi yang tidak mengalaminya mungkin tidak akan faham perasaan saya dan suami ketika itu. We were both speechless. I cried right in front of her. My worst nightmare came true, eventually...

She comforted us as best she could. She strongly recommended for the boys not to be institutionalised because their case were not severe. She gave a list of centres for us to explore to send the boys for their occupational and speech therapy. I was still crying. Then I asked her, "Are we too late?". She answered, "Let's not think about it - whether we're late or early or just in time. We just work towards getting them better..", and smiled. Well, her warm smile managed to calm me down a bit though... After finalising all the bills, we left Dr. Rajini's office with one aim in our minds - GET THEM BETTER... And since then we have never looked back. it. Until today. We are still working on it....